People Who Stutter and those in their communities may consider being part of a research study. This workshop asks: under what conditions does participation feel worthwhile, safe, and respectful? Drawing on real life cases from the NLSA Accessibility and Inclusion Project, this workshop engages participants in a how-to for developing ethical, collaborative strategies that build trust and meaningful engagement.
Participants will develop a way to understand whether and how to be involved in research, from an ethical and relational process. They will be able to identify conditions that enable or constrain engagement across stakeholders and design responsible recruitment, consent, and dissemination practices. Attendees will also gain practical strategies for building trust, reducing participation barriers, and creating collaborative research environments that support people who stutter and other partners as active contributors rather than subjects.
About the presenters
Greg O'Grady
Author of SURVIVING STUTTERING! ' a white-knuckle roller coaster ride'. Founder of ... 'a million things I need to say’ 1K/ 5K Walk, Run and Roll for Stuttering Awareness and Bursary Program, co founder of the NLSA, Host of Some Stutter, Luh! Podcast, DJ of "BLOCKS," a weekly radio show.
Paul De Decker
Paul De Decker is a sociolinguist at Memorial University in St. John's, NL, whose research investigates stuttering as a sociolinguistic practice. He produces Some Stutter, Luh!, Newfoundland and Labrador’s first podcast about stuttering and communication differences.